Six Steps: Part III

When I spoke with my friend Jean, who hasn’t let go of me despite my absence from social media, I told her about my reticence in blogging. I’m struggling, and I had the absurd idea that I should be much further recovered before I write anything. Well, I didn’t realize how absurd it was until we spoke. ūüôā She reminded me that you all, like me with you, would want to share in the struggle. We need to know we’re not alone.

Here, then, are the last two of the six steps.

5. Your choices are yours.¬†It might be tempting to tell ourselves that we’re making a change to please someone else. That way, if it doesn’t work out the way we would like it to, we know where to place blame. “You happy now?” we shake our fists in frustration. It’s because it’s so hard, that’s my opinion. Withdrawing from my medications is the number one most difficult thing, next to my father’s death, that I’ve ever been through. Does my decision have wide consequences/rewards? Of course, it does. The difference in who I am off meds with who I was on them is like – well, like the difference between milk chocolate and dark. I’m dark chocolate now. I’m richer with my emotions, like eating the most expensive caviar, but there is a slightly bitter bit at the end. Dark chocolate is an acquired taste. I’m teary a lot, over silly movies and TV shows. And my emotions are all over the place. God bless my mother, as she accepts who I am now in all its nakedness, reassuring me I’m much better to be around without being literally sedated. I suppose in a way I’ve been sleepwalking through the last 28 years. Does my family’s happiness at my condition mean they want to see me struggle? Not at all. I think what I’m trying to say is that it’s¬†my¬†life and I made this choice. Whatever happens, good or bad, it’s my responsibility.

6. Practice loving kindness.¬†Times like these, fraught with emotion, need lots of affection and tenderness. Everyone, including ourselves, needs our loving kindness or at least the benefit of the doubt that we are all doing our very best. My mind is sharper now, which I’ve decided is not necessarily a good thing. With no buffer between my mind and the memories of nearly thirty years, I grieve for all that was lost. I grieve the loss of who I might have been. I grieve at costing my family, especially my mother, so much sadness and fright over the years as they had to deal with a shell of a human being. So, yes, I need to practice loving kindness with myself as I try to keep myself mindful and free from the gaping maw of past defeat. I’ll never do it perfectly. All I can do is my very best, and sometimes be happy with half-efforts. That’s all we can do, any of us.

Six Simple Steps to Take Back Our Control: Part One of Three

I’ve been having the most difficult time putting my words down here. It can’t be because I’m afraid I’ll get it wrong. It’s my story, my life. How wrong could I get it?

It seems that my most effective/popular blog posts have been when there is a specific list to help change something in one’s life. Hey, who doesn’t like lists, right?

Six Simple Steps to Take Back Control

1. Question everything, and don’t be afraid of your doctor.¬†When we lose or think we lose control of our lives, it’s not always with a crash and broken bones. It’s sometimes pretty subtle. For me, it starts with my doctor says that I need Prozac because I am in a major depression. I’m 27 years old at the time. I can say no, but he’s a¬†doctor.¬†If I didn’t need a pill, surely he wouldn’t suggest it? What I learned years later, something most of you probably know but I will share anyway, is this: doctors have to dx¬†something¬†in your chart in order for the insurance to pay. It’s not as important as Monty Python’s The Meaning of Life, but for some reason it scared me when he said that. So, being a little shell-shocked, I would have agreed to anything short of a lobotomy. Here’s the thing. Our doctors stumble in the darkness too. They aren’t perfect. Don’t be afraid. Honestly, I still get fearful, and have to tell myself over and over before an appointment: “He may have more medical knowledge, but I know myself¬†better.”

2. Trust your instincts.¬†I have been on psychiatric medications for over 30 years, and I’ve written before about trusting our instincts, especially with health concerns. I think I wasn’t absorbing¬†for me¬†what this actually meant. It means knowing how my body feels on drugs, identifying side effects you are absolutely not willing to live with, and letting that be okay. I’ve had two different reactions to my objection to side effects which made me so light-headed and clumsy that I fell twice in six weeks, once spraining my wrist. “You have to weigh the cost of living with the side effects on one hand or living with the symptoms of your illness on the other.” That was my psychiatrist.

I’ve gone on and on. Important things to ponder. I’ll cover steps three and four tomorrow.

Peace. xoxo

Christina

Social Media CON-nections

So okay. First I want to explain my choice of title for this post. Social media connections have many positive effects on people and individuals. What bothers me is it seems a little – like chocolate (for chocolate lovers). So if you love chocolate, you’d at least want to taste it, right? It would be weird not to.

Then suddenly, there is more and more chocolate, as far as the eye can see. And it’s still tasty, sure, but there’s starting to be kind of a chalky after-taste, like the chocolate “mouse” in Rosemary’s Baby. If you ever saw that movie, you’d remember how her actual satanic neighbors drew her in with kindness. But it still seemed strange to Rosemary, who brought it to her husband Guy’s attention. He laughed it off, telling her it was because of her pregnancy, or she was paranoid. When all the while, he had already been accepted into the circle.

Apparently, social media isn’t satanic (unless I’ve missed something in my research). But do you actually realize how many there are out there, and how many individuals join on a daily basis? Here is a graph of¬†just¬†the top fifteen social media websites of 2017:

Top social media sites in 2017

Taken from The 15 most popular social networking tabs in 2017

This is absolutely incredible to me. Most of these social networking sites I have never even heard of. And, contrary to popular opinion, I was not born under a rock. Let me just go on record as saying there are several good reasons for a person to spend hours on these sites. One, the person may be homebound in some way, or agoraphobic. Some people, struggle as they might to overcome that particularly difficult form of anxiety, cannot make it happen. For that person, social media is truly needed, plus it’s “open all night,” so there’s usually a friendly person to text with. I’m purposely using the term¬†text because as much as we might try to convince ourselves, we aren’t¬†speaking with anyone in particular.

When you see someone’s picture of FaceBook or any of these other sites, how much do you trust that photo? It could be a man or woman posing as the opposite sex, or even a teenager trying to sound more grown up.

For Pete’s sake, if I met someone in an online dating service, thought he was gorgeous and said all the right things, I would¬†still¬†ask to meet him in a very public place. If he or she is not who they say they are, they either won’t show up or fend me off with some lame excuse.

When did we become a country where social media websites have become like food to order on a menu. If I lived completely alone on an island, but was miraculously wealthy and could afford electricity, I would limit my time on social networks to one or two hours a day.

There are just so many other things to do in the world. It’s only my opinion, but I feel I can speak about it with some expertise because I’ve been there. Feel free to disagree.

Buyer beware. There are “con” (short for confidence) people everywhere.

Peace,

Chris

Continue reading Social Media CON-nections

To Video Log or Not: That is the question.

Okay, besides working on my short story, crocheting, and struggling with a surprise gift for my mom’s 90th birthday, I’m hoping to start a Video Blog on November 1st. Of this year. Yep, that will be the same month as NaNoWriMo, but – hey! It – hopefully – won’t take me all day every day to write 50k by November 30th. So, after talking with my therapist, I decided to make a pro and con list about it.

See, my therapist thinks that because I¬†had¬† and sometimes still have terrible self-consciousness while walking Pookie, it might not be the best thing for me; vlogging, that is. I walk Pookie daily (unless it rains too freaking long like it did yesterday) and it’s better. If I focus on what I’m doing, walking Pookie, I don’t really have time to wonder what everyone else is thinking.

So, here’s the list:

Pros:

  • I could possibly help raise awareness about mental illness and all that it entails
  • It’s been said, and (even though I love to write) it’s sometimes right; a¬†picture speaks a thousand words.
  • It would challenge my vulnerability
  • If just¬†one¬†person is made to feel not so alone, it will beat all the negative replies I might get
  • Being my authentic self, not worrying whether my hair is a mess, or not worrying about the scars on my face and hands, will be a massive breath of fresh air
  • Nothing is more real than the truth staring you (the watcher – lol) in the face

Cons:

  • I might not raise any awareness at all. People might be saturated with mental illness and just “change the channel.”
  • Maybe a picture does speak a thousand words, but my writing is kinda decent, right?
  • I would be completely vulnerable, like those nightmares when you wake up, walk in late for an exam, and just then realize you’re entirely naked.
  • Everyone I know and even people I hardly know at all will see me.
  • What if I totally fudge it?
  • I’m too¬†ugly.¬†What if I make people gag just looking at my face?
So, that’s it. I still have some time to think about it until November. Thoughts?

B is for Blaming

My sister’s three children, who are grown adults now — the eldest is forty, and the younger two are in their late thirties — like to blame her for the way their lives are now, drawing on countless stories of a “horrific” childhood raised by a sometimes absent practicing alcoholic. This is always heartbreaking for Carol but she has learned to say “Goodbye, I’m hanging up now,” when it gets redundant and too difficult.  I’m sure their childhoods were indeed difficult, but at what point does one say, “What’s happening in my life now is up to me. These are my choices. No one else is responsible and no one can change those choices except me.” 

It’s easier to blame, though. It hurts less, and pointing that sharp finger at ourselves takes blind courage. I know, because for years I went to Al-Anon meetings missing the point. I talked about the alcoholics in my life: my dad and my sister, and how they had wronged me; how screwed up my life was now because of them. Sound familiar? ūüėČ I reasoned that since Carol had started drinking when she was 16 and I was an impressionable three, my childhood was essentially taken away from me. I vacillated between the placater/pleaser and the lost child/adjuster in Claudia Black’s family roles  For those of you from alcoholic families, which role(s) did you play?

Naturally, I felt tons of victimization in these roles, and I played it to the hilt. Poor me, poor me, I cried at the meetings, and — I love them so much — no one at  those meetings ever  once stopped me, trusting the process.

It has taken years, and I mean years, for me to get to the place where I can sit down at an Al-Anon meeting and know I’m going to talk about some facet of my life that I need help with. Because that’s what it’s all about. Al-Anon is for me. AA is for the alcoholic.

Not that I still don’t play  the blame game every now and then. Who doesn’t? It’s  like something that almost rolls off my tongue and I have to consciously stop myself. Oh wait —noooo, what happened  was my own choice! ūüôā

How I Survived A Life-Threatening Illness


I lie awake at night, wondering what fresh hell tomorrow will bring me.

“Change is inevitable We can depend on that. By letting go of our efforts to influence the future, we become freer to experience the present, to feel all of our feelings while they are happening, and to more fully enjoy those precious moments of joy.” –Courage to Change, One Day at a Time in Al-Anon

So, you might think, as you read this, that bringing humor to the situation is insanity. But you know me and my sarcastic wit. Would you recognize me any other way? ūüėČ Besides, the alternative is too stupid to consider, and useless. Plus really, who doesn’t love a little Tina Fey?

But seriously, I have had such a hard time writing this (it’s been on my mind for a while), because I honestly don’t want to come off sounding pitiful, or elicit sorrowful responses, most of all. What has happened to me could happen to anyone–could happen to you. So please–don’t feel sorry for me. I’m here, I’m alive, and that’s a¬†good¬†thing.

It has not been the greatest year so far. Lol. First, I had to go back into a psychiatric partial day treatment program to get my bipolar meds adjusted. But what I learned shortly after I was admitted was that this therapist had noticed my hypomanic episode building since before Christmas. Why she didn’t say something earlier is still a mystery to me, but hey–at least she copped to it when my mom finally told me my agitation and irritability were getting hard to deal with. All of this explains why I ¬†had such a hard time decorating for the holidays last year. Seriously, I was like a slug, and even when I’m depressed it’s like my favorite time of year. I barely put up lights on the ceiling and yanked out the tree (with lights already on), no ornaments—voila. There. Be happy. Ha ha.

Psych partial started on January 25th. My psychiatrist there (it’s like you no longer have the shrink you had on the “outside;”¬†this¬†shrink, the one in the hospital, calls the shots) tried several different meds, at different levels, and suddenly—instead of hypomania, I started feeling incredibly depressed. Yeah, I know–I should have my own channel on Youtube, because my life is just¬†that¬†fascinating.

Then, I went home early from the program on February 13th, because my back and left leg were just killing me. All I missed was relaxation therapy, but you’d think it was chemical engineering, for all the tap dancing I had to do to get out of it. So I went home.

That night, I woke up in the wee hours freezing cold with my teeth chattering. Yikes. I can’t remember the last time my teeth chattered. So I got up, took my temp, and it was elevated; something like 101. (I’m not totally sure at this point; my baseline temp is 97. I just know I had a fever) I also noticed like a big cyst or something high up on my inner left thigh. I wasn’t too worried at this point. I took a couple aspirin, ran some hot water on a washcloth to lay on the cyst and went back to sleep under like 5 blankets.

The next I knew it was morning and I was in a sweat. Good. So my temp was down and the cyst had also diminished. But then, my fever spiked back up again at around eight. I told my mom I thought I needed to go to the ER, and she agreed.

Long story short, what started out as a simple cyst turned out to be necrotizing fasciitis, or flesh-eating bacteria. Yep. My WBC, which is supposed to be 10 or under, was 21, so I was admitted—instead of let go from the ER—on Valentine’s Day. I had three surgeries in four days in that most private of areas–whether you are a woman or a man–and spent eight days inpatient. Granted, I was on morphine, and much of the pain is now a blur, but still. My fever was up and down, up and down. They had me on I.V. antibiotics, three at a time (once I read a label, and it said 2,000 units!!)–like throwing paint on the wall–trying to see what would work. Finally the WBC came down enough that they could let me go with Amoxicillin for one week.

I had to have the surgical sites packed (with gauze) by home care nurses for¬†at least¬†two months, my surgeon said. So yes, I’m positive 2,000 people have seen my va-jay-jay at this point. I kept forgetting to charge an admission fee. I always meant to, though. At least I still had some self-respect. Just kidding. The nurses were so kind and gentle with my body and my heart. I couldn’t have asked for nicer people to care for me.

Now here’s the best part. I saw my surgeon yesterday for our weekly checkup of the surgical wound sites, right? She was SO pleased with how well everything is healing. Everything has closed (from the inside out, to prevent future infection) at least halfway, in some cases more. In fact, I’m doing so well that she said I can say goodbye to the daily nurse care and she doesn’t want to see me again for a month. After that, who knows?¬†That’s exactly¬†five weeks¬†from the day I was admitted, right?

What an incredible journey!! I wonder what the rest of the year has in store? Bring it on.

“All The World’s A Stage . . . “

anxiety-memeI just had to post this anxiety meme, and like larger than life, because as soon as I saw it I laughed so hard I almost choked on my¬†coffee. It’s¬†so totally¬†true. Every time I’m ever with my therapist and we’re talking about something that makes me anxious, or we try to do something on the fear ladder and I get anxious, she immedately goes for the “Okay. start your breathing. Try to take yourself down to at least a three.” Right. I must’ve been breathing wrong before! ¬†If that worked all the time, psychiatrists would be completely out of business.

Anyway, that’s beside the point. I would be a court reporter right now if it weren’t for perforance anxiety. ¬†And, I absolutely¬†loved¬†that job, even more than teaching, and teaching was pretty darn cool. See, the skill of stenography came pretty easily to me because I also knew the skill of braille from when I was a teacher for visually challenged K-12 students in Columbus, GA. Braille is a combination of keys on a machine that amount to much like chords, piano chords is what it made me think of. Court reporting shorthand is similar, so I was able to adapt quickly.

When I graduated, I worked on a temporary license until I could pass the state exam. Only . . . that day never came. Although I did very well in school and often surprised both teachers and students with my speed and accuracy, when it came time to take the test, I felt lost. We were given three five minute timed tests and one hour each test to transcribe them afterwards: 225 wpm for testimony, 200 wpm jury charge, and 175 wpm hard literary. I froze. I just froze.

It didn’t matter how much prep time I had given myself before I walked through those doors. It didn’t matter what I told myself about others who had gone before me and passed. ¬†The first two times I made it through all three timed tests and tried to transcribe all three parts. The second time I managed to transcribe two parts. The third time, although I took all three tests as per usual, I was too disgusted with myself to even read through what I had taken down. Mind you, each time I entered the test in Lansing, it cost fifty dollars; not exactly something to sneeze at. ¬†After the third time I resigned myself to performance anxiety and gave up. I gave up a chance at a career I know I would absolutely love for the rest of my life.

Any time I walked in those doors in Lansing, Michigan, even before the actual test began, my heart would start beating faster, I’d start sweating, I’d get this¬†horrible, unshakable feeling¬†that every other person in the room is staring at me, my hands would shake, and I’d have trouble catching my breath. I talked to psychiatrists and therapists about possible hypnotherapy for this so that maybe I¬†could¬†take the test and pass it, but so far no one has been able to help me.

I’m so sorry this has gone on so long. There are causes and solutions for performance anxiety. I’ll write about those next time.

Until then, be well and be happy!

good performance
Fino a domani, I miei amici!